Alternative Therapy for Cerebral Palsy
D. G. Kamath, Proximal Stabilization Centre
Surrey, B.C., Canada
The majority of Cerebral Palsy Children with Quadriplegia are wheelchair bound, totally dependent, and often develop contractures in spite of everything that is said and done for them. The Proximal Stabilization programme is likely to change it. But it needs to be monitored carefully for long term effects.
Cerebral Palsy is mainly a motor disorder. The children afflicted with it have poor postural security in anti-gravity positions, such as crawling, sitting, etc. The Postural Insecurity is caused by imbalance between the spastic limbs and the flaccid trunk of the child (1) and fear for safety. Sometimes both neck and trunk are weak among some of them. The imbalance develops due to the inability of the trunk muscles to hold the body up-right against gravity. The increased effort by the child results in recruiting muscles of the extremities and tone increases in the large muscles of the limbs (2). The effects of imbalance can be minimized by appropriate support to the trunk or neck and trunk (3).
All Cerebral Palsy Children may be helped by Proximal Stabilization in future. However, presently some children make better progress than the rest of the subjects.
The programme is conducted by an experienced physiotherapist and an occupational therapist who pioneered the programme. The children are referred by physicians.
An ambulator is the other equipment the child needs. It has a rectangular wooden base mounted on 1 inch casters in the back and 1 ½ inch casters in front. The body of the ambulator is made out of half-inch PVC pipe. It has a rectangular front and triangular sides. The pipe is heat moulded. The front is covered by fiberglass mesh. The child leans against it while standing as shown in figure 3. The back end of the base, which has rubber pads, digs into the floor and the ambulator is stable in this position. Hence the leaning child is safe.
Parent Training: - Before commencing the parent training programme, the child is assessed for his functional level and equipment needs. The assessment and the planned programme are discussed with the parent, with special emphasis on the role of the parent in the programme. Because the parent has to conduct the programme after training, it is important that the parent understands the programme correctly, tries it out at home, and provides feedback. The training includes:
Usual steps to improve postural security are:
Follow-up: - The entire programme takes 10 to 18 months and is provided free of cost to Cerebral Palsy victims and their parents. Depending on their individual needs the parents make arrangements to treat their children at home and bring them to the Centre to review progress. During review most of the time has been devoted to advising the parents how to advance their children. Also, to upgrade the orthosis and ambulator to meet continually changing needs of these children.
Seven Cerebral Palsy children were referred to the programme. Among them four are less than four years of age. The other three children are between seven and thirteen years of age. All are Quadriplegics. The thirteen year old boy gained head righting ability. The other two from the third group did not improve due to severe retardation. Three younger children achieved the ability to walk independently. One child discontinued the programme early.
1. Kamath, D.G., ‘The Neck and Trunk Functional Support for Cerebral Palsied Children.’ Proceedings, 8th International Congress, World Federation of Occupational Therapists, p. 751-2.
2. Lundervold, ‘Electromyograph Investigation in Position and Manner of Working in Typewriter.’ Oslo, Bragger and Boktrykka, 1951, p. 171.
3. Kamath, D. G., ‘Proximal Stabilization and It’s Effects on Function of Cerebral Palsy Child.’ 1985 Annual Meeting, American Academy for Cerebral Palsy and Developmental Medicine, p. 103.